Stories

Kabuki Syndrome is a spectrum disorder, meaning the symptoms of it can be wide-ranging, from mild to severe. Experiences can vary wildly from one family to the other and on this page you’ll find the stories of many different families. We hope that somewhere in all our collected experiences you’ll find something that you can relate to or recognise. Many of the families that contribute to our Stories page also include their details for our Contact a Family page. So if you find a family you feel you could share your experiences with then check the Contact a Family page.

We’re always looking to expand our Stories page so If you’d like to share your story with our other Kabuki families then contact us at: kabukisyndrome@googlemail.com