Other Kabuki Sites
I’m sure, as a newly-diagnosed family, you did exactly what I did when we heard the words ‘Kabuki Syndrome’: Googled it! There are a lot of sites out there with information on KS, many of them re-hashing information taken from other sites and in some cases they are entirely wrong. The following sites are specialist, with detailed and useful information from knowledgable sources:
The Kabuki Syndrome Network (Canada) – http://www.kabukisyndrome.com/index.html
Supporting Aussies Kids with Kabuki Syndrome (SAKKS) – http://www.sakks.org/index.html
